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Cheerio's avatar

So grateful for this study group! I joined right away when I saw this and have been faithfully reporting every month!

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Kalle Pihlajasaari's avatar

Please approach the Control group organisers to add a dead-man-switch to their data set.

A checkbox that the user must re-check at least every 6 months or so to indicate that they are still alive. Otherwise their status must be listed as unknown after say 30 days until they check the check box again.

Also they might be able an app to indicate that the user is still making use of their cellphone and when they fall silent they could flag it as such. Alternately a couple could mutually agree to update their spouses details if one passes away for any reason.

Without this information the mortality data will be very hard to use as an end user will not indicate death.

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EDIT:

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I had a look an at least one part of this is already implemented with a monthly reminder. That is great. The health card may be a way for someone to indicate that the participant has potentially passed away and the reason for this, this information could obviously be corrected if the participant logs in and is in fact alive.

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